DISCOVER EMPOWERED BY ILLNESS

Today was a breakthrough of a different kind... For 6 years I struggled to find answers and only had 2 doctors in that time that wanted...

In the beginning of feeling extremely sick(not being able to hold my own weight up, gripping items with extreme difficulty, unable to...

The feeling of defeat is something we all feel at one time or another in life so what happens when that feeling consumes you to your very...

I saw a post on social media not too long ago that started with the words "Choose Your Hard". It had me contemplating on a serious note....

My daughter and I had an argument yesterday, when I felt defeated I came to a realization that we tend to hide who we are when it comes...

Caring for yourself or self care.....I think we confuse the two, unfortunately. Self care these days is promoted as bubble baths and...

Being a parent can be hard(to say the least). When they're young the questions come a little bit easier. Why is the grass green or the...

I'm going to take a break from talking about illness and just write about something simple yet so complex....... Happiness. Life is truly...

Today is infusion day for my son so, on these days our anxiety is heightened. For him it's the fact that he has to be poked with a...

Our day begins when I open my eyes, the sensation of being ill already settled into my body. My hands are tingling, my vision in my left...

I always knew I was unique....just not this "unique"! I have had medical issues since I was a small child, some of which were...

I have been through many hardships in my life and some ways I do believe it was preparing me for this newly found, unwanted life. As I...

Hello world! My name is Jessica and I am here to take you through a journey of rare discovery. That amazing detection of genetic...